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Home > Conditions and Diseases > Genetic Disorders
Alport Syndrome
Information about this hereditary renal disease. German site with English translation.
http://www.alport.de
Cystic Fibrosis Symptom
Cystic Fibrosis Information and Resources.
http://www.cystic-fibrosis-symptom.com/
Dr. Greene's HouseCalls
A discussion of medical information on trisomy, trisomy 13, genetics, and his own personal family experience with this rare disease.
http://www.drgreene.com/
DS Network, Inc.
DS Network is a 501(c)3 parent run organization here in Arizona. Our Purpose is to provide information to assist people with Down Syndrome to better understand and arrange for services, and to provide networking opportunities for people with DS and their families.
http://dsnetworkaz.org
Ectodermal Dysplasia Society
A support group for those with Ectodermal Dysplasia (including Incontinentia Pigmenti) based in the UK.
http://www.ectodermaldysplasia.org.
Genetic and Rare Conditions
Lay advocacy groups, support groups, information on genetic conditions and birth defects for professionals, educators and individuals. Disorders from A-Z.
http://www.kumc.edu/
Genetic Disorders
Explores the role of diet in birth defects and genetic disorders. Includes nutritional links to disorders such as Down syndrome, cerebral palsy, homocystinuria, and cystic fibrosis.
http://www.ctds.info/
Immd Institute of Medical Molecular Diagnostics Ltd.
The IMMD is a genetic testing laboratory located in Germany. Provides genetic tests for hereditary breast cancer, various cardiovascular diseases or diseases with onset in childhood.
http://www.immd.de/
National Urea Cycle Disorders Foundation
Information about the organization as well as the disease. Family support, membership, newborn screening project and medical information.
http://www.nucdf.org
NDI Foundation
The Nephrogenic Diabetes Insipidus Foundation is dedicated to informing and helping the NDI community.
http://www.ndif.org
Primary Ciliary Dyskinesia
Information on a rare congenital disease.
http://www.p-c-d.org
Primary Ciliary Dyskinesia
Information on a rare congenital disease.
http://www.p-c-d.org/

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